Drivers of Progress 2. Collaboration

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• Peer Learning Communities
• Payer-Provider Partnerships
• Coalitions
• Technical Assistance and Centers of Excellence

The collaboration of dedicated and passionate leaders, learning from one another, has been instrumental in implementing, strengthening, and sustaining inpatient, outpatient, and home-based palliative care across the state.

Peer Learning Communities

Several formal and informal peer learning communities across the state have supported progress. Regular meetings with colleagues doing the same or similar work helped participants see their work as part of a larger system-change effort. It also enabled them to reach out to colleagues for information, problem-solving, and support. The California Health Care Foundation (CHCF) funded learning communities aimed at increasing access to palliative care for the safety net (see “Peer Learning Communities Supported by California Health Care Foundation”). These learning communities contributed to progress by helping participants make the business case for palliative care, track and report operational and outcome measures, and focus on program sustainability.

Peer Learning Communities Supported by the California Health Care Foundation

When I think about palliative care in California, one of the things that I love most is that it feels that I am part of a community who works together, regardless of what health system we work for, to be able to create better systems to care for patients and families.

—Matthew Gonzales, MD, Associate Vice President, Chief Medical and Operations Officer, Providence Institute for Human Caring

Payer-Provider Partnerships

Passing SB 1004 was an important step in making palliative care available to Medi-Cal enrollees. By itself, however, it could not ensure health plans and palliative care providers could effectively and collaboratively deliver high-quality services to the people who would benefit from them. Field leaders formed several initiatives that gave health plans (including those not offering Medi-Cal products) and provider organizations support and tools to develop and sustain community-based palliative care (CBPC), including home-based palliative care (HPBC) and outpatient (clinic-based) palliative care. (See “Example California Payer-Provider Partnership Initiatives.”)

Payer-provider partnerships highlighted the importance of open communication between payers and providers and a shared commitment to consistency, quality, and standards in the delivery of effective, sustainable, patient- and family-centered palliative care services.

I think palliative care has grown in California because there are so many passionate experts and people who really see that this type of care makes a difference.

—Kim Bower, MD, Medical Director, Blue Shield of California

Example California Payer-Provider Partnership Initiatives

Coalitions

Formal, structured coalitions have played a pivotal role in supporting the progress of palliative care in California, including the Coalition for Compassionate Care of California (CCCC), the Chinese American Coalition for Compassionate Care (CACCC), and local collaborative efforts.

Founded in 1998, CCCC’s mission is to promote and enhance quality palliative and end-of-life care in California. Over time, CCCC has adeptly convened a diverse group of stakeholders, ranging from health care professionals to community-based organizations and patient advocates, foundations to policymakers. Serving as the backbone organization for the field in California, CCCC has played a vital role in fostering and facilitating collaboration, learning, and action through peer learning communities, payer-provider communities, policy advancement, and POLST implementation.

Established in 2005, CACCC emerged to address the lack of linguistically and culturally appropriate end-of-life information and training available within the Chinese community. Among other things, CACCC actively promotes advance care planning across California and spearheads hospital-based patient ambassadorship programs in Northern California.

In addition to statewide coalitions, several active local coalitions help drive progress. For instance, the San Diego Coalition for Compassionate Care maintains affiliations with CCCC and the California State University Shiley Haynes Institute for Palliative Care. It conducts monthly member meetings, hosts an annual conference, and provides a speakers bureau for community organizations. Another example is the San Francisco Palliative Care Workgroup, which operates under the San Francisco Department of Disability and Aging. Its membership includes local leaders from various sectors, such as health systems, community-based organizations, payers, family and patient advocates, and foundations. The workgroup developed a strategy for the City of San Francisco to expand palliative care, advocated for a resource directory (currently being implemented), and organized annual advance care planning workshops in commemoration of National Health Care Decisions Day. Notably, the workgroup adopts a community-driven, racial equity lens in its work, as evidenced by its three Learning Journeys with the Black, Chinese, and Latino/x communities.

These statewide and local coalitions mobilize diverse stakeholders and lead initiatives that transcend the scope or capacity of any one organization. Coalitions have played, and will continue to play, a critical role in propelling the advancement of palliative care.

Technical Assistance and Centers of Excellence

State and national organizations established centers of excellence and provided free or low-cost toolkits to help health plans, health systems, and palliative care provider organizations make the business case for, pay for, design, and implement specialist and generalist palliative care services.

In California, CCCC and CHCF have created and distributed multiple toolkits to help all members of the palliative care ecosystem implement generalist and specialist palliative care and advance care planning in multiple settings. Nationally, the Coalition to Transform Advanced Care, the National Hospice and Palliative Care Organization, and the Center to Advance Palliative Care (CAPC) have all created toolkits to help payers and providers design and implement home-based palliative care. CAPC also created multiple tools to help health systems make the case for investing in palliative care more broadly and to help employers and other health care purchasers support palliative care. As of April 2023, 135 California-based organizations have CAPC memberships, giving their employees full access to all CAPC training and tools.

Since 2002 the Palliative Care Leadership Center (PCLC) at UCSF — one of nine such centers launched by CAPC — has provided training and support to health care organizations aiming to establish or expand their palliative care program. Each of the PCLCs across the country provides support for participants to conduct a comprehensive needs assessment and engage in strategic planning to clarify goals, set priorities, and enhance operations, and a year of ongoing mentoring, guidance, and troubleshooting. The establishment of the PCLC at UCSF notably increased access to these supports for California providers. As of April 2023, 134 California-based organizations have completed PCLC training.