Key Concepts

Dying in America: Improving Quality and Honoring Individual Preferences Near the End of Life
Expert consensus report with recommendations for care delivery, clinician-patient communication and advance care planning, professional education and development, payment systems and policies, and public engagement and education. (Institute of Medicine)
Honoring Patients’ Wishes: Expanding Palliative Care in California
Report describing potential impact and challenges of expanding access to CBPC, recommended focus areas, and promising models for providing care outside the hospital. (Berkeley Forum)
Uneven Terrain: Mapping Palliative Care Need and Supply in California
Data maps that contrast the estimated need for palliative care among people in the last year of life with information about the availability of hospital and community programs in California. (California Health Care Foundation)
Final Chapter: Californians’ Attitudes and Experiences with Death and Dying
Report of results from a survey examining Californians’ preferences, attitudes, and experiences around end-of-life issues. (California Health Care Foundation)
Gather Round: Understanding How Culture Frames End-of-Life Choices for Patients and Families
Report describing the learning and decisionmaking experiences of people approaching the end of life, and their loved ones, based on in-depth interviews with culturally diverse families. (California Health Care Foundation)