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Reports & Initiatives

Privacy, Security, and the Regional Health Information Organization

Avalere Health LLC

June 2007

Regional health information organizations (RHIOs), which promote electronic exchange of patient information among participants, are grappling with a variety of privacy and security issues as they evolve. This study, based on a literature review, interviews, and an informal survey, examines some of the key issues that nine RHIOs encountered and their strategies for managing them.

The study found that privacy and security challenges are surmountable. A RHIO’s unique characteristics -- the types of data shared, who participates, and its specific needs and priorities, among others -- influence how an exchange addresses these challenges. Solutions are diverse and evolving.

The study also found that consumers play a limited role in privacy and policy decisions, even though they are important RHIO constituents. RHIOs could benefit from the experiences of and collaboration with others, and policymakers can help RHIOs navigate privacy and security issues and move toward sustainability.

The full report is available under Document Downloads below.

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Privacy, Security, and the Regional Health Information Organization (322K)

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