This national consumer survey, a follow-up to a groundbreaking 1999 study, reveals American attitudes and concerns about health privacy and confidentiality in the wake of implementation of federal privacy protections (HIPAA).

This issue brief examines opportunities for greater integration of consumer health information with other clinical information systems and explores how consumer health information data standards may help.

Proposition 54 appeared on the October 2003 California voters ballot and was defeated. If passed, it would have created a constitutional amendment that limited the racial/ethnic information the government could collect.

These three guides and their supplements aim to assist a variety of health care professionals and organizations in their efforts to comply with the the Federal Health Privacy Rule.

This report reviews the state of genome science, defines common terms, and discusses how genetic information is vulnerable to inappropriate use and disclosure.

This survey regarding implementation efforts of the Federal Health Privacy Rule presents the results and key findings of interviews with 100 health care organizations that do business in California.

This report will help small group and safety-net providers understand the Health Insurance Portability and Accountability Act of 1996 (HIPAA) requirements. A training tool outlines the key HIPAA provisions as well as necessary planning and implementation efforts.

Many industry initiatives have developed guidelines for health Web sites to protect the privacy of consumer information online. This report examines these self-regulatory efforts and compares their strengths and weaknesses.

This report explores the concerns of health care industry and government leaders about the scope, timeline, and cost of the Health Insurance Portability and Accountability Act of 1996 (HIPAA) requirements.

This survey of more than 1,000 U.S. Internet users indicated that consumers were wary of sharing their personal health information online and that the convergence of technology and health had raised many privacy concerns.

This report compares the privacy policies with actual practices of the 21 most-visited health-related Web sites. The report dispels the belief that visitors are anonymous and shows that personal information may be vulnerable.

This is the first-ever independent national survey of consumer attitudes about the confidentiality of their medical records. A California subsample is included and both a survey summary and topline report are available.

This primer reviews the major issues surrounding the protection of personal health information in a changing health care delivery system. It is written for health care providers, plans, consumer groups, policymakers, and the media.