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Reports & InitiativesSafeguarding the confidentiality of personal health information is a fundamental principle in health care, both on- and offline. CHCF surveys consumer attitudes, monitors industry practice, and provides information and education about health privacy policy and regulation.
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May 2009 This issue brief analyzes the health privacy legal landscape in California before 2009 and discusses changes made by the enactment of the American Recovery and Reinvestment Act of 2009. Health Privacy Reports from the Center for Democracy and Technology January 2009 The application of new tools for sharing medical data must keep in sight the personal privacy rights of patients. To help clarify the issues surrounding health privacy, CHCF co-funded a series of reports by the Center for Democracy and Technology (CDT). The State of Health Information Technology in California: Consumer Perspective March 2008 This survey provides an overview of California consumers' adoption, use, and perception of health information technology. A Delicate Balance: Behavioral Health, Patient Privacy, and the Need to Know March 2008 This issue brief explores the laws governing health information privacy as they relate to mental health and substance abuse treatment, and presents three scenarios illustrating the challenges in finding the right balance between privacy and disclosure. Whose Data Is It Anyway? Expanding Consumer Control over Personal Health Information February 2008 This publication explores the technological and legal landscape governing personal health information, as well as key issues that must be addressed for consumers to have an appropriate level of control over their own health records. Snapshot: The State of Health Information Technology in California, 2008 January 2008 This snapshot provides the first comprehensive overview of use and adoption of health information technology among providers, hospitals, and consumers in California. Best Practices for Employers Offering Personal Health Records (PHRs) December 2007 These best practices are intended to serve as aspirational guidelines for employers, not a one-size-fits-all solution, as companies develop and implement their own PHR-related policies and practices. Privacy, Security, and the Regional Health Information Organization June 2007 This report examines key privacy and security issues that regional health information organizations may encounter and the policies and practices they adopt to manage those issues. Santa Barbara County Care Data Exchange April 2007 This project helped to focus national attention on the value of health information exchange and pioneered a variety of innovative approaches during nearly nine years of existence. Although the Exchange is not operational, RHIO development efforts will benefit from the project's lessons learned. Designing a Consumer-Centered Personal Health Record March 2007 The Breast Care Center at UCSF will design an application that builds a customized care plan for patients diagnosed with breast cancer. Such patient-centered PHRs may remind a patient to take medications, provide tailored decision prompts to help people understand and adhere to treatment regimens, or transmit data to providers. |
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