California HealthCare Foundation Health Privacy

PROGRAMS

BROWSE TOPICS

ABOUT CHCF

MY ACCOUNT

Reports & Initiatives

back print

National Consumer Health Privacy Survey 2005

Forrester Research, Inc.

November 2005

In 1999, the California HealthCare Foundation (CHCF) released a groundbreaking study of Americans' attitudes and behaviors concerning health privacy. The study found that nearly three out of four Americans had significant concerns about the privacy and confidentiality of their medical records. Six years later, following implementation of national privacy protections under the Health Insurance Portability and Accountability Act (HIPAA) and the President's push to adopt electronic medical records, a CHCF survey plumbs consumers' attitudes about the privacy of their health information.

Conducted by Forrester Research, the survey reveals that -- despite federal protections under HIPAA -- two in three Americans are concerned about the confidentiality of their personal health information and are largely unaware of their privacy rights.

In addition, one in eight patients reportedly engages in behavior to protect personal privacy, presenting a potential risk to their health. More than half (52%) of respondents are concerned that employers may use health information to limit job opportunities, highlighting the implications of the privacy issue.

Yet despite these concerns, consumers report a favorable view of new health technology, with a majority (59%) willing to share personal health information when it could result in better medical treatment.

As efforts to develop a nationwide health information network proceed, unaddressed concerns about personal privacy could have major implications.

The complete survey findings and an executive summary are available under Document Downloads below.


Document Downloads

Download NowNational Consumer Health Privacy Survey 2005: Executive Summary (90K)

Download NowNational Consumer Health Privacy Survey 2005: Slide Presentation (397K)

Download NowNational Consumer Health Privacy Survey 2005: Survey Instrument (38K)


Related CHCF Pages

Press Release 11/09/05

1999 Medical Privacy and Confidentiality Survey



Help with Document Downloads and Media Players